Uncertainty in illness

My first brush with uncertainty rooted in illness (that I can remember) occurred when I was ten years old and facing my first open heart surgery. It wasn’t until my sociology of health and illness courses in undergrad, around age 21, that I learned there were people, words and theories that talked about what I experience/d yet could not name.

My take on Marfan Syndrome

Marfan syndrome (MFS) is an example of a chronic illness with acute episodic periods.  What makes it a chronic illness is its long lasting nature, which means instead of "curing it" you "manage it".  However, there are times when a person with MFS may need immediate or emergency care that if not received can result … Continue reading My take on Marfan Syndrome