Everything I have learned so far about how a hospital or our healthcare system works could not equip me for the moment when the doctor said, “You need emergency surgery. We can do it today. You don’t have any other medical conditions, right?”.
I took these videos because I never want to forget or disvalue what my life was life before. I’ve tried to hold back all expectations, mostly because I can't imagine what it would be like to live as someone who is more sighted (if the surgery goes well) than I am now, but also because I now realize how the weight of striving to be "normal" has cost me.
More than anything – I yearned to embark on this journey on my own terms. I was ecstatic at the prospect of mapping out my own course, even if that included joining a 12 day coach tour, because.. baby steps. I was tired of waiting. Waiting for the right time. Waiting for other people to go with me. Waiting until I felt more confident to set off on my own. I was ready to take a chance and hopefully prove to others and more importantly, to myself, that I could do this.
The New Year is upon us once again. I just love this time of year when so many people are focused on personal renewal and growth. I feel particularly attuned to these feelings this year, so I thought I would share my three resolutions for 2015. In forthcoming posts I will discuss the specific activities … Continue reading Preparing for the year ahead
In early June I was invited to attend and speak at a Patient Care Consortium in Chicago, Illinois as part of my role in an ethnographic study on interprofessional teamwork and patient and family involvement in the intensive care setting. My talk was in front of more than fifty experts across the field of critical … Continue reading Viewing the ICU differently