Blog

Uncertainty in illness

My first brush with uncertainty rooted in illness (that I can remember) occurred when I was ten years old and facing my first open heart surgery. It wasn’t until my sociology of health and illness courses in undergrad, around age 21, that I learned there were people, words and theories that talked about what I experience/d yet could not name.

On the eve of eye surgery

I took these videos because I never want to forget or disvalue what my life was life before.  I’ve tried to hold back all expectations, mostly because I can't imagine what it would be like to live as someone who is more sighted (if the surgery goes well) than I am now, but also because I now realize how the weight of striving to be "normal" has cost me.

Departure gate wisdom

a photo of me smiling widely from a bridge overlooking the Inn River in the Austrian Tyrol.

More than anything – I yearned to embark on this journey on my own terms. I was ecstatic at the prospect of mapping out my own course, even if that included joining a 12 day coach tour, because.. baby steps. I was tired of waiting. Waiting for the right time. Waiting for other people to go with me. Waiting until I felt more confident to set off on my own. I was ready to take a chance and hopefully prove to others and more importantly, to myself, that I could do this.